Logan's Story
Logan was born on the 4th December 2011 at 30 weeks gestation and weighing just 3lb 1oz , he was one of twins but sadly a few hours after they were born we lost his twin sister Layla. He then spent seven weeks in the special care baby unit at one point around two weeks old he caught an infection called NEC , he was then given full oxygen and rushed to a neonatal intensive care unit at St Peter’s hospital in the time he was there he was giving all types of medication and at one point a blood transfusion , it took him around two weeks to get his full strength back and was then transferred back to the special care baby unit at Frimley park.
Since being out of hospital he has had have regular visits to my peadiatrician to check how he was getting on and at around 11months he went for an MRI scan about his sleeping, from this he was diagnosed with PVL Perventricular Leukomalacia, us as parents were told he would have learning disabilities throughout his life but only time would tell how severe it would be then in August 2012 he was diagnosed with Quadriplegic Cerebral palsy followed by Epilepsy in March 2020.
In every day life he struggles with daily activities and sometimes to be included in things that are not always accessible for him which can make life quite hard for not just him but also as a family when trying to have days out so after joining The Knights Foundation life became that little bit easier for us as a family were able to enjoy activities that Logan probably would never have experienced or even done, things like indoor skydiving, flying in aeroplanes, helicopters and his absolute favourite water skiing.
The Knights Foundation are the most kind, caring group of people that we have ever met, they also put their families first and accommodate all needs of children.
We are very lucky to be a part of this amazing foundation and really can not thank them enough for all the support and enjoyment we get from being around them.